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Running for Taylor in 50 States: Virginia

When I crossed the finish line of Charlotte’s Thunder Road Half Marathon blindfolded in November 2013, I knew the race would be a tough act to follow. But I didn’t intend to stop running for my sister,...

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Running for Taylor: From the Other Side

On a cool morning in Chapel Hill, North Carolina last April, I arrived on the UNC campus for my fifth straight Tar Heel 10 Miler. I was the healthiest and fittest I’d ever been, and I was coming off a...

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Running for Taylor: A Change of Plans

Eight months ago, I registered to run the Fargo Half Marathon on May 9 – the seventh leg of my 50-state quest to honor my sister Taylor, fight Batten disease and support the millions of people...

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National Running Day 2015: Looking Back, and Ahead

Today is National Running Day, a “coast-to-coast celebration of running.” On this day last June, I put on a blindfold and ran an unofficial 5K to honor my sister, Taylor. I cherish my vision; blindness...

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Running for Taylor in 50 States: Sprinting for Hawaii

Thanks to The Garden Island newspaper for helping us spread the word about Batten disease in advance of my next race – the Kauai Half Marathon! Kauai’s only daily newspaper published our story in...

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